Read e-book online Genetic Data and the Law: A Critical Perspective on Privacy PDF

By Mark Taylor

ISBN-10: 1107007119

ISBN-13: 9781107007116

Study utilizing genetic information increases numerous matters with regards to privateness safeguard. lots of those matters may also practice to investigate that makes use of different own information, yet now not with a similar implications for failure. The norms of exclusivity linked to a personal existence transcend the present felony inspiration of private facts to incorporate genetic information that pertains to a number of identifiable participants at the same time and nameless info which may be linked to any variety of members in numerous, yet kind of foreseeable, contexts. it's the percentages and implications of organization which are major, and those percentages can merely be assessed if one considers the interpretive capability of knowledge. they're ignored if one fixates upon its interpretive pedigree or misunderstands the that means and value of id. This e-book demonstrates how the general public curiosity in study utilizing genetic information may be reconciled with the general public curiosity in right privateness defense

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Perhaps unsurprisingly, the ideas put forward by Margulis have attracted strong criticism. It would be possible to challenge this ‘consensus’ definition on a number of grounds. For example, the definition not only assumes that there is ‘an ultimate aim’ of privacy, but actually dares to identify it. If the former is contestable, then the latter is hugely contentious. Also, the definition states that privacy is about ‘control’. This idea has itself been disputed. It is, however, an idea of privacy that I intend to pursue – albeit with a particular idea of what is implied by the idea of control – and so it will be necessary to consider some of the objections to it.

It would be possible to challenge this ‘consensus’ definition on a number of grounds. For example, the definition not only assumes that there is ‘an ultimate aim’ of privacy, but actually dares to identify it. If the former is contestable, then the latter is hugely contentious. Also, the definition states that privacy is about ‘control’. This idea has itself been disputed. It is, however, an idea of privacy that I intend to pursue – albeit with a particular idea of what is implied by the idea of control – and so it will be necessary to consider some of the objections to it.

Lynoe, ‘Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research’, Scandinavian Journal of Public Health 32 (2004), 224–9. While the majority (95%) of those participating in the Estonian Genome Project are reported to consider it important to be informed about what kind of research will be done using their data, a majority (81%) also support the idea that fresh consent should be required before new research is conducted on existing samples.

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Genetic Data and the Law: A Critical Perspective on Privacy Protection by Mark Taylor


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