Get The Connected Self: The Ethics and Governance of the Genetic PDF

By Heather Widdows

ISBN-10: 1107008603

ISBN-13: 9781107008601

At present, the ethics infrastructure - from clinical and clinical education to the scrutiny of ethics committees - specializes in attempting to reform proficient consent to do a task which it's easily now not in a position to doing. Consent, or selection, isn't really an efficient moral instrument in public ethics and is especially complicated within the governance of genetics. Heather Widdows indicates utilizing replacement and extra moral instruments and argues that if everyone is to flourish it is important to know and appreciate communal and public items in addition to person items. to do that she indicates a two-step procedure - the 'ethical toolbox'. First the harms and items of the actual scenario are assessed after which acceptable practices are installed position to guard items and forestall harms. This debate speaks to center matters of latest public ethics and indicates a way to spot and prioritise public and customary items.

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30 Genetic material and information 31 the connected self this chapter will consider the nature of genetic information, property in the body, the right to know and not to know, personalised medicine, anonymisation and identifiability and genetic exceptionalism; and it will introduce concerns surrounding research on genetically homogenous indigenous groups. Genetic material and information Before exploring in more detail the two key aspects of genetics which establish the genetic self as the connected self – that it is shared and identifying – a brief introduction to genetic information and material is useful.

It could not be accomplished quickly and new frameworks could not be implemented until these changes were made. The current need for adequate ethics is too pressing to wait for this change. Third, there are significant ethical worries about moving to a property model. Including concerns about the commodification of persons and the destructive effect this would have on pictures of human being: a move from persons to things and from relationship to contract. This would be damaging for individuals and for social capital and trust, as discussed in detail later.

The charge of paternalism negates and silences other ethical claims as it labels the respect of all other values as unethical: to introduce any value other than choice is to be “paternalistic”. Paternalism has become the bogey man of contemporary ethics: those who are paternalistic are condemned for being disempowering and are said to 20 The anti-paternalism critique begins with Mill and the harm principle. The view is that in a liberal society individuals should be left alone to make their own choices, even if they are harmful to the self, if they do not harm others (Mill 2008[1859]).

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The Connected Self: The Ethics and Governance of the Genetic Individual by Heather Widdows

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